Wednesday, 10 October 2012
This morning we left Bristol to go to London for my appointment at NHNN autonomic clinic. The journey started off well but soon started going wrong. The train from Bristol Parkway had no functional disabled toilets and this is not the first time it has happened on that particular route. This meant I had to try to get myself into the tiny regular toilet. I couldn't hold it in for the whole 2hr journey. We should have got to Paddington at 13:00 and was about 30mins late. The taxi ranks are a bit out of the way! Luckily we had hospital transport booked so we didn't have the stress of navigating Londons public transport.
The autonomic clinic were running about 40mins late. The waiting room for the clinic was so hot I thought I was going to faint. We had to wait outside where it was cooler. The doctor I saw was very nice and I could actually understand what he was saying, compared to the last doctor who spoke way too quickly (One I nicknamed Dr Talks Very Fast). I spent a lot of the appointment explaining my symptoms and answering a lot of questions. I've already forgotten a lot of what was said, good thing they send a report out.
The outcome of the appointment was pretty much what I was expecting. They diagnosed me with pots and syncope. They gave me a prescription for fludrocortisone (florinef) to hopefully help with the symptoms. I also have a followup appointment in July 2013. I guess now I just wait for the report.
All in all a stressful but successful day.